2013 Utah push for CBD for epileptic kids
Mom wants medical marijuana Parent says it is the last hope to help her son's battle against epilepsy By Brady McCombs Associated Press SALT LAKE CITY Jennifer Jennifer May's 11-year-old 11-year-old 11-year-old 11-year-old 11-year-old son suffers debilitating seizures seizures that have severely limited his development to that of a toddler and kept him from attending full days of school. She's tried numerous medications, diets and treatments, but says none has worked against Stockton Stockton May's rare form of epilepsy epilepsy known as Dravet syndrome. Jennifer May is a staunch Republican who once thought giving medical medical marijuana to children was crazy. Now, she's pushing for a state law that would allow allow the use of a liquid form of medical marijuana available in Colorado that she believes is helping children with the same syndrome. "We don't think it's a cure, we don't expect it to be a miracle. It just needs to be something we can try for our kids that don't have anything left," said May, 40, of Pleasant Grove. "I want to see if this can even give my child a quality of life for a few years." Her story was first made public in a blog post last week by the Libertas Institute, a Utah Libertarian Libertarian group. The Salt Lake Tribune wrote about her Wednesday. The Epilepsy Association Association of Utah supports May's push and notes the medical value of extracting extracting cannabidiol from the cannabis plant for people with epilepsy. "It comes down to the medicines currently available," available," said Annette Maughan, president of the Epilepsy Association of Utah. "Either the side effects effects are horrendous and ' 1 ' ' . ' ' Jennifer May builds a puzzle with her son, Stockton, at their Pleasant Grove. Stockton suffers debilitating seizures that keeps him from going to a full day of school and has severely stunted his development to that of a toddler, steve griffin ap life-threatening life-threatening life-threatening or the efficacy efficacy of the drug is just not there." However, the Institute of Medicine and the American American Medical Association have said more research needs to be done, while the American Academy of Pediatrics Pediatrics doesn't support medical marijuana prescriptions prescriptions for children, the Tribune reported. May isn't the only parent parent turning to medical marijuana to aid their children. children. A family in Mesa, Ariz., plans to give their 5-year-old 5-year-old 5-year-old 5-year-old 5-year-old son medical marijuana marijuana to help treat his genetic genetic brain defect, the East Valley Tribune reported. reported. In New Jersey, a family fought to get their 2-year-old 2-year-old 2-year-old 2-year-old 2-year-old with the same syndrome syndrome as Stockton May access to medical marijuana. marijuana. Parent Brian Wilson Wilson confronted Gov. Chris Christie at a campaign stop, saying, "Please don't let my daughter die." Christie eventually signed off on legislation that allows marijuana to be distributed in edible form and permits growers to cultivate more than three strains. But he stopped short of eliminating eliminating a requirement that a pediatrician and psychiatrist psychiatrist sign off before children children gain access to the drug. Jennifer May became convinced the drug could help her son as she researched researched its use by children children with the same syndrome. syndrome. She talked with the mother of a 6-year-old 6-year-old 6-year-old 6-year-old 6-year-old girl named Charlotte in Colorado Colorado who said her daughter's daughter's life has improved dramatically since taking a strain of medical marijuana marijuana now called "Charlotte's "Charlotte's Web." The strain comes from a genetically modified cannabis plant developed by a nonprofit in Colorado called Realm of Caring. So far, May's research has indicated indicated there have been no side effects unlike other other drugs and treatments for the syndrome. May has considered moving to Colorado and applying for a medical marijuana card but said that's impractical. Her husband has a good job with great medical insurance; insurance; her mother has cancer; cancer; and her two older children, children, an 18-year-old 18-year-old 18-year-old 18-year-old 18-year-old boy and 14-year-old 14-year-old 14-year-old 14-year-old 14-year-old girl are in high school. "We have a lot to lose by moving," she said. May said she doesn't want to make it legal to grow pot in Utah but would like it to be possible to bring a liquid or oil form of the drug to Utah from Colorado. She said liquid pot would have no street value because it contains low quantities of the ingredient ingredient that gets people high. "It's not smoked, it's not eaten in brownies, nothing like that," she said, adding that it's given orally. Utah's Republican-led Republican-led Republican-led legislature has traditionally traditionally been opposed to efforts efforts to decriminalize marijuana. However, that could change as people tell their stories of why it matters, matters, said Connor Boyack, LODGING gPf)MING DOGGIE DAY CARE president of the Libertas Institute, a Utah libertarian libertarian policy group that supports supports the push. He said legislation will be introduced introduced in the next session that starts in January. "It is easy to oppose this when you think it's people getting high and people pretending that they're sick," Boyack said. "It's much harder to deny people people this medical option when you know the specific specific circumstances of their story and how much relief it might bring them."